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In January 2016 there were 1735 home educated children with a statement or EHCP (described as "other arrangements made by the parents").
Two thirds of home educated children with special needs DON'T have a statement or Plan.
The percentage of home educated children who have a statement of SEN (or EHCP) varies among local authorities between zero and 20%, averaging at around 5%.More data on children with SEN outside school here
Definition Special Educational Needs
A child has special educational needs if they have a "learning difficulty" which calls for "special educational provision" to be made for them. A "learning difficulty" is where a child has a significantly greater difficulty in learning than the majority of children of their age or has a disability which prevents or hinders them from making use of educational facilities of a kind generally provided for children of the same age in schools
Several points arise from this:
- Disability is not in itself a special educational need
- Educational facilities generally provided in schools refers to mainstream state-funded school, so the fact that a child might be able to manage in home education or in a private school with very small classes is irrelevant
- Giftedness is not regarded in law as a "special educational need" although a child may be gifted AND have a disability which prevents them from accessing mainstream education (More)
Reasons for Home Educating Child with SEN
If you have taken a child out of school to home educate them which of the following factors applied
Source 2016 Parents Survey
In my 2016 Parents' Survey over a third of respondents had been home educating for more than 2 years, and three quarters of children had previously attended mainstream school.
The effect of problems at school can be devastating; school becomes impossible and parents feel they have no choice except to home educate. In some cases home education is perceived a stopgap, but even where a child returns to school, parents don't necessarily expect it to last.
Taking Child Out Of School
As explained in the Government Elective Home Education Guidelines for Local Authorities children with special educational needs - including those with a statement or Education Health and Care Plan - have an equal right to be educated at home. Parents do not need to ask for permission (although if the child is a pupil at a special school the rules are different)
The fact that a school is named in Part 4 of the statement or in Section I doesn't mean that the child is automatically registered. Nor does naming the school here mean that a child will be obliged to attend the named school in future rather than being home educated. Equally, a tribunal directing a particular school does NOT mean the child can't be home educated instead.
The Local Authority's Role
The local authority has a duty to review the statement or EHCP annually. More about LAs here.. If you disagree with what your local authority is saying about your child's special needs, you can make a formal complaint and/or appeal to the SEN Tribunal. (There is a new requirement to obtain a mediation certificate before going to tribunal) More
Having a statement or EHCP can be useful for getting Access Arrangements in exams, but you will still need to show the "normal way of working." More
Law, SEN Regulations, SEND Code
The law on special needs changed in England in 2014. All NEW assessments are now for Education Health and Care Plans but children who already have a statement of SEN will be transferred to the new system up to 2018. Statements will continue to be reviewed just as they have been in the past, until the statement becomes due for reassessment under the new rules. The statement isn't enforceable on the parent. This also applies to EHCPs. More about statements and EHCPs here
The new law on special needs is contained in the Children and Families Act 2014, supplemented by the SEN Regulations. The information you need from the Regulations about EHCPs is here. Statutory guidance is contained in the Special Educational Needs Code of Practice (Read what the SEND Code says about home education here)
2 Types of Home Education
Where a child has a statement or an Education Health Care Plan and is educated otherwise than at school, EITHER the parent makes the special educational provision OR it is arranged and funded by the local authority. It is extremely rare for local authorities to provide therapies or support (including SALT or OT) once a child is home educated, as parents are deemed to have opted out.
Disability Living Allowance and Personal Independence Payment
Financial support if you or your child has a disability link. Carer's Allowance can be claimed under certain conditions. You don't need a statement of SEN or an EHCP or specific medical diagnosis in order to claim Disability Living Allowance., since DLA is for children who need more help with daily living or with mobility (getting around) than other children of the same age.
Benefits and Work has useful guides for completing various forms and also for appealing decisions. Support organisations for particular conditions or syndromes may also be very helpful (see eg Cerebra's DLA Guide). In addition, your local Citizens Advice Bureau may be able to help.
DLA stops at 16 and the young person has to claim Personal Independence Payment which has different rules. Transfer from DLA to PIP is not automatic and the young person will become responsible for making a claim for PIP in their own right. However, it is possible for a parent/carer to oversee their claim as what is called an "appointee". This is arranged following a home visit from the Department for Work and Pensions (DWP). More information from a parent about PIP and DLA Another parent advises "PUT EVERYTHING IN... don't assume 'they' know a single thing. Labour your points. If you're not sure if it's 'relevant' to the question you're answering PUT IT IN ANYWAY!". If you provide the appropriate information at the right stage in the process, the young person may be excused from the face to face assessment.
This GOV.UK link explains each stage of the claimant's PIP journey, as does the DWP PIP Toolkit which also has other useful links such as the Atos/Capita postcode map Contact-a-Family has provided a useful PIP Overview, likewise the National Autistic Society, see also Benefits Guide
The CAF PIP Guide includes transfer DLA to PIP: points system carrying out activity reliably ie safely, repeatedly, in a reasonable time period, and to acceptable standard. 1/ daily living; 2/ mobility/getting around includes psychological distress. No means testing; conditions for parent being appointee; "indefinite" DLA awards; PIP1 form; questionnaire; relevant evidence; considerations for opting out of face to face assessment; variable or fluctuating conditions; Carer's Allowance.
This PIP Claim Form Guide analyses each question in turn, also information about Pip Review Form, AR1. PIP Guide + Passporting Arrangements from Hft, a national charity, providing services for people with learning disabilities, includes information about appeals, PIP assessment thresholds, and GP evidence form.
http://www.communitycare.co.uk/2018/03/29/pip-payments-autism-overcoming-challenges-application-process/ "Short or monosyllabic answers could in the eyes of the autistic person be perfectly rational responses to a question, but they may have failed to understand that a wider explanation and exposition are necessary. Asking an autistic applicant whether they can do their laundry, for example, may elicit a “yes” as the person knows how to operate a washing machine. What this may disguise is the fact that someone is unable to organise their time to do their washing. For example, James* said yes, but he was dependent on his mother visiting at periodic intervals to do it for him, as he could not decide which of his clothes would be classed as clean. When she was ill he wore the same clothes for months. Alex* was asked about his social life and responded that he saw his friends “regularly”. Digging a little deeper revealed Alex would only see the same person about once a month, on their terms."